SubjectWell eyes diversity in COVID 19 vaccine trials

Upcoming Events

COVID-19: A Family Discussion on How to Navigate Thoughts and Feelings that Arise for Children, Teens and Adults with Developmental Disabilities and their Families,  Speakers: Erin Rivelis, PhD & Carla Bernstein, PhD 

Thursday, November 4th at 7:00PM

Watch this space for registration information. 

 
COVID 19: Latest Update on What IDD Agency Staff and Care Coordinators Need to Know, Speaker: Vincent Siasoco, MD
 
Friday, November 19, 2021 at 10:00AM
Watch this space for registration information.
 
 
News, Guidance & Resources
 
 

Reopening NYC Schools in Person Screening Guidance

NADP Statement on Vaccine Hesitancy and FAQ

Webinar Recording: Returning to the Office - Legal Issues Related to Vaccinations, Masks & Social Distancing

Emergency Guidance from NYS DOH re: Face Coverings

FDA Approves Pfizer-BioNTech COVID-19 Vaccine

INfertility

COVID Vaccine Hesitancy: 12 Things You Need to Know

 

Fully Vaccinated? When should you get a COVID test?

 

Back to School webinar in English, Spanish, French, Italian, Korean and Mandarin!

 

COVID-19 Materials for People with I/DD and Caregivers

 

We are excited to share a set of resources for your use developed in partnership with the

Human Development Institute at University of Kentucky:

Vaccine Confidence Plain Language Talking Points (Click here to access): to be used as a foundation of vetted plain language in your own materials creation and conversations; 

General social media graphics – to be shared via your own social media channels; and

Social media graphics based on the talking points – to be shared via your own social media channels.

You can access all of these materials via this link: Dropbox - Vaccine Confidence - Simplify your life.

A huge thank you to the team at HDI, Green Mountain Self Advocates, and the Outreach Subcommittee for the multiple points of feedback provided.

 

 

Video of VaxFACTS Presentaton to Families on June 3, 2021

Video of VaxFACTS Presentaton to Care Managers on June 4, 2021

 

We are working to provide New York’s Developmental Disabilities community with

science-based information on Covid-19.

Follow us:

Twitter: https://twitter.com/VaxFactsDDNY

LinkedIn: https://www.linkedin.com/groups/9020902/

Facebook: : https://www.facebook.com/groups/vaxfactsddnypublic/?ref=share

“Engage & Educate: Equipping the New York State Disability Community with Science-Based Information About Vaccines” 
project aims to increase access to/understanding of information about COVID vaccines among persons with intellectual and developmental disabilities (IDD) and their families, to assist them in making informed decisions, with a particular focus on un- and under-served communities across New York State. (See full project description below)
  
CDC Guidance on Johnson & Johnson Vaccine
 
If you got this vaccine more than three weeks ago, your risk of developing a blood clot is very low.
 
If you got this vaccine within the last three weeks, your risk of developing a blood clot is also very low. However, you should be on the lookout for possible symptoms of a blood clot: 
  • Severe headache
  • Blurred vision
  • Fainting
  • Seizures
  • Pain in your abdomen (chest or stomach)
  • Leg pain or swelling
  • Shortness of breath
 
Video Series: "Why I Got Vaccinated"
Short videos of people in the DD community explaining why they got vaccinated. Please review the videos listed below and share with your social media networks:
We need to create more of these types of videos. If you or someone you know would like to speak about why you got the vaccine, please fill out this form: https://einsteinmed.co1.qualtrics.com/jfe/form/SV_2tWeDWuXCgcHnOC
 
Social Media Accounts
The VaxFactsDDNY project has three social media accounts. We recognize that everyone has their preferred social media channels. If you are using any of these platforms, please follow (Twitter) or join (FB and LinkedIn):
Funding For This Project 
This project is supported by grants from:
  • The New York State Developmental Disabilities Planning Council to the Rose F Kennedy (RFK) University Center of Excellence on Developmental Disabilities (UCEDD) at Einstein-Montefiore
  • The Administration on Community Living grant to the RFK UCEDD

Full Project Description“Engage & Educate: Equipping the New York State Disability Community with Science-Based Information AboutVaccines,”a one-year grant from the New York State Developmental Disabilities Planning Council, was awarded to the Rose F. Kennedy University Center of Excellence in Developmental Disabilities (UCEDD) at Montefiore-Einstein on March 1, 2021.The project aims to increase access to/understanding of information about COVID vaccines among persons with intellectual and developmental disabilities (IDD) and their families, to assist them in making informed decisions, with a particular focus on un- and under-served communities across New York State.The team is led by Karen Bonuck, PhD, Joanne Siegel LCSW, and Rachel Passmore, MPH.Project partners include: Inter-Agency Council of Developmental Disabilities Agencies, Inc., the American Academy of Developmental Medicine and Dentistry, Special Olympics of New York, the Autism Society Habilitation Organization, the Chinese Planning Council, Community Inclusion and Development Alliance, and Sinergia, Inc., New York State’s two other UCEDDs- the Strong Center at the University of Rochester and Westchester Institute of Human Development- are also collaborating on the project.